I am extremely grateful to Fred Vanderbom, blogger at http://survivinginfantsurgery.wordpress.com. He continues to offer top notch information to those of us whose lives have been impacted by infant surgery. By researching medical articles on this topic in the US, Europe, Canada and around the world and interpreting this material for the lay person, he offers a much appreciated service to many. Fred’s blogsite gives invaluable insight into infant surgery through the lens of pyloric stenosis surgery–the stomach surgery I had at three-weeks-old. He had this surgery at 10 days old.
Recently, he shared research that he’d done on the treatment of pyloric stenosis (PS). He took it decade by decade, beginning with the early 1900s, and reported his findings to the best of his knowledge, given the available literature on this subject. As a result of reading his posts, my understanding has expanded greatly. While I had thought that in the US, anesthesia for infant PS surgery was not the norm and that the use of paralytics and restraint was, I see that the picture likely varies from hospital to hospital across America, or maybe from region to region, and is greatly dependent on time period. SIS has also made me aware that in parts of the world besides the US, following a more medical protocol, where medication was tried rather than surgery, was just as much an option as surgery.
One thing that I am very grateful for is SIS’s focus on helping others. Before SIS’s history of the treatment of PS, Fred reported on adhesions that can result in later life from PS surgery. He surveyed the medical literature and helped the layperson understand the likelihood of his or her suffering from this condition and what one might do to find relief. SIS also offered solace and advice to parents who had PS babies and, before the surgery, had gotten the run around, i.e. told by medical professionals that their babies were just fussy or being nursed incorrectly or that they were just overreacting to their babies’ difficulties eating and digesting food.
I personally can’t wait to see what 2012 will bring to the SIS platform. It’s my favorite blog and one that I hope will gain readership as more and more folks and families hear about the support they can get from Fred’s work. Do click in and see if SIS speaks to you or anyone you know.